RESOURCES for SPIRITUAL and COMPASSIONATE END OF LIFE CARE   home

Caregiving

http://www.caregiving.com – probably the best site we’ve seen with good discussion groups, blogs and support for caregivers

http://caregiver.org/ – Family Caregiver Alliance in SF, lots of information but you have to dig around and explore

http://nfcacares.org/ – good all around non-profit site but again, you have to dig

http://americanheart.org/presenter.jhtml?identifier=3039829 – excellent, has an online journal and other good resources

http://www.nlm.nih.gov/medlineplus/caregivers.html – factual, a good resource, you can sign up for email newsletters on any health related topic

http://www.caring.com – comprehensive, somewhat commercial

http://www.caregiverstress.com – also a bit commercial but user friendly

http://www.caregiver.com/ – good, friendly, has newsletter

http://caregivershome.com/ – a good site sponsored by a publisher with a newsletter…it has a good “ask an expert” section

http://familycaregiving101.org/ – good all around site with message board

http://www.thefamilycaregiver.org – see NFCA site above

http://www.growthhouse.org – comprehensive death and dying resource

http://www.spiritualityandpractice.com/ – very interesting, lots of information and approaches to spirituality

http://www.womenshealth.gov/faq/caregiver-stress.cfm – good page about stress

http://www.strengthforcaring.com - connecting caregivers

http://www.dshs.wa.gov/pdf/Publications/22-277.pdf – Family Caregiver Handbook, worth downloading!

carolodell.wordpress.com – Carol O’Dell’s site

http://www.nia.nih.gov/HealthInformation/Publications/ExerciseGuide/ – a free online book about exercise – very well done, easy to read.

http://www.netofcare.org/content/your_needs/spiritual_needs.asp – this is a nice discussion of spirituality and caregiving that links to a good site about caregiving

Complementary & Holistic Therapies

National Center for Complementary and Alternative Medicine – Excellent database for Complementary Therapies

Art Therapy on the Web – good connections for the artist in all of us.

Holistic Nurses Association – “the heart of nursing, the science of holism,” they have a yearly conference that promotes holistic practices for caregivers

Legal Issues etc…

Aging with Dignity – Find out about FIVE WISHES: America’s most popular advance directive

Dying Well – Ira Byock’s homepage, very informative

Americans for Better Care of the Dying – a non-profit public charity dedicated to social, professional, and policy reform aimed to improve the care system for patients with serious illness, and their families.  A very important site, check out  20 things that an internist could  do  to improve the quality of a patients end of life experience (under public policy link).

Bereavement

ADEC – Association for Death Education and Counseling – excellent resource base per bereavement, newsletter and conference information

Living With Loss Magazine – a support group in print and a complete grief resource center, the links page will give you a complete bereavement index

Beyond Indigo – changing the way you feel about grief and loss

Crisis, Grief & Healing – this page is meant to be a place men and women can chat or browse to understand and honor the many different paths to heal strong emotions.

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Hospice, Nursing & Palliative Care 

http://www.aahpm.org - American Academy for Hospice and Palliative Medicine this is the comprehensive site for palliative and hospice care, but we don't need to tell you that!

http://www.abcd-caring.org/  - Americans for Better Care of the Dying is a non-profit public charity dedicated to social, professional, and policy reform aimed to improve the care system for patients with serious illness, and their families.  A very important site, check out  20 things that an internist could  do  to improve the quality of a patients end of life experience (under public policy link).

http://www.ahna.org - American Holistic Nurses Assn. "the heart of nursing, the science of holism," yearly conference that promotes holistic practices fror caregivers

http://www.americanhospice.org/  - The American Hospice Foundation

The Center to Advance Palliative Care (CAPC) is dedicated to increasing the availability of quality palliative care services in hospitals and other health care settings for people with life-threatening illnesses, their families, and caregivers..

Dale Larson's Hospice "Great Ideas" Page - another must see for hospice administrators and personnel

http://www.dyingwell.com  - Ira Byock's homepage, good resource

http://www.eapcnet.org/index.html - European Association for Palliative Care

http://www.epec.net/EPEC/Webpages/index.cfm - Our mission is to educate all healthcare professionals on the essential clinical competencies in palliative care.

Elisabeth Kubler-Ross Foundation  The EKR foundation is dedicated to preserving and promoting the pioneering life work of Elisabeth Kübler-Ross MD and others committed to compassionate care for those who are near the end of life, those who have died, their loved ones, and their caregivers.

End of Life Nursing Education Consortium Project (ELNEC) is a comprehensive, national education program to improve end-of-life care by nurses, and is funded by a major grant from The Robert Wood Johnson Foundation. Primary project goals are to develop a core of expert nursing educators and to coordinate national nursing education efforts in end-of-life care.

http://www.edc.org/lastacts/  - Innovations in End of Life Care - The purpose of Innovations in End-of-Life Care, an international journal and on-line forum, is to improve the quality of care provided to patients near the end of life and to their families, through the dissemination and critical examination of innovative practices being implemented throughout the world.   

www.aapc.org   - American Association of Pastoral Counselors (AAPC). Represents and sets professional standards for over 3,000 Pastoral Counselors and 100 pastoral counseling centers in North America and around the world.

www.acpe.edu  -  Association for Clinical Pastoral Education (ACPE). A multicultural, multi-faith organization devoted to improving the quality of ministry and pastoral care offered by spiritual caregivers of all faiths.

http://www.alayainstitute.org/ - The Alaya Institute offers up-to-date resources that support individual growth, spiritual development, End-of-Life education and policy, compassionate service, and access to hospice and grief support. Also offering an end of life care practicioner program whichoffers the absolute best in end of life care education with leaders in the field such as: Ram Dass, Ange Stephens, Frank Ostaseski, Rachel Naomi Remen MD, Cheryl Nelson, Charlie Garfield, and Ramita Bonadonna. The program is centered in the SF Bay area and consists of monthly sessions with certification at the end of a year.

http://www.bardo.org/   - The Bardo of Death Studies - "Our mission at the Bardo of Death Studies is to assist in the development of discourse, discussion, and archival materials related to personal experiences in Death and Dying. We serve as a friendly net repository for these personal reflections both from the professional and the lay public) and a crossroads resource for others who happen by in search for personal reflection in their own time of need."    

http://www.beyondtheveil.net/  -  "A Near Death Experiencer answers questions most people are afraid to ask"   

http://www.buddhanet.net/ebooks_g.htm - Here's one you have to check out  for it's sheer weight in gold - another one of those "read-it-by-Acrobat Reader" sites. The book called From Womb to Womb is the one to note for references to the bardos. 

www.cappe.org  - Canadian Association for Pastoral Practice and Education (CAPPE). A national multi-faith organization which is committed to the professional education, certification and support of people involved in pastoral care and pastoral counseling.

http://www.holyisland.org     one possible path here is to click on Links - Samye- Spirituality - Buddhist Teachings - In-Depth Teachings - VOLUME 2, NUMBER 3 DEC. 1998 Teachings on the bardo by  Khenchen Thrangu Rinpoche .  At this point you'll nee Acrobat Reader which if you don't you can  download from www.adobe.com for free. Download  "Get Acrobat Reader"   
(for free) at the bottom of Adobe Home page.

http://www.khandro.net/mustardseed_1.htm - nice all around website with Buddhist and other teachings

http://www.lib.virginia.edu/small/exhibits/dead/otherworld.html  - an incredible look at the Tibetan Book of the Dead, also see http://www.lib.virginia.edu/small/exhibits/dead/dying.html  and http://www.lib.virginia.edu/small/exhibits/dead/western.html

www.nacc.org  -  National Association of Catholic Chaplains (NACC) An association of pastoral ministers who participate in the church´s mission of healing whose mission is to promote professional development and support services for our members.

http://www.OmMaNiPadMeHum.com/  - turn your harddrive into a prayer wheel  

http://www.theclearlight.com/lrs   -  The Labyrinth Readers Society, learn the art of reading from sacred texts for those who are in need or dying.   

http://www.spcare.org/  The aim of the Spiritual Care Program is to demonstrate practical ways in which the compassion and wisdom of the Buddhist teachings can help those facing illness or death, their families, and medical caregivers.

http://www.bardotrainingcenter.com  - bardo trainers    

http://www.jewelsofancientlands.com/  - beautiful and ancient artifacts    

http://www.hei-art.com/  - art for voyagers    

   

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