Hospice, Palliative, Pastoral Care, and Nursing Conferences Pastoral Care, Bereavement, Hospice Events Calendar Links for Spiritual Caregiving, Palliative Care, Pastoral care and Hospice
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  Links for Spiritual Caregiving, Palliative Care, Pastoral care, Complementary Therapies, Caregiving, Bereavement and Hospice


Bereavement

ADEC  - Association for Death Education and Counseling - excellent resource base per bereavement, newsletter and conference information
 
Living With Loss Magazine   - a support group in print and  a complete grief resource center, the links page will give you a complete bereavement index

Beyond Indigo  - changing the way you feel about grief and loss

Crisis, Grief & Healing  - this page is meant to be a place men and women can chat or browse to understand and honor the many different paths to heal strong emotions.


Complementary & Holistic Therapies

Activitytherapy.com   - comprehensive site with a good index

Upfront - Complementary Therapies  ABCD Exchange : January 1999 -  a good discussion of the relevance of complementary therapies

Art Therapy on the Web - good connections for the artist in all of us.

Medbioworld -  complete and comprehensive page of links for complementary therapies

Hospice of Westchester  - lists some additional therapies and basic theory behind their use

IAHPC Bookstore - lists some good books about CTs

Mednets -  Journals

Complementary and Alternative Therapies in Nursing Education  - scholarly article full of references for nurses and educators

Wholenurse.com -  Holistic and alternative medicine articles, fairly commercial but may be good source of material for CAM


 
Caregiving & Family - legal, references, etc...

Aging with Dignity - Find out about FIVE WISHES: America's most popular advance directive

Caregiving.com - A newsletter of issues and resources for caregivers

Viatical information  - Viatical information 

Dying Well  -  Ira Byock's homepage, very  informative

Hospice Patients Alliance  A patient advocacy hospice watchdog group that  has a "right to life" slant

Last Acts   - a national coalition to improve the quality of end of life care

The Legacy Kit - a 24 page booklet to help one organize documents and memories - for end of life planning

National Viatical.org   - Viatical information

http://www.supportivecarecoalition.org/default.htm - Improve living with life-threatening illness

http://www.viatical.org/   -  Viatical information

http://www.whosedeathisitanyway.com/ - PBS Special



Hospice, Nursing & Palliative Care - organizations and reference

http://www.aahpm.org - American Academy for Hospice and Palliative Medicine this is the comprehensive site for palliative and hospice care, but we don't need to tell you that!

http://www.abcd-caring.org/  - Americans for Better Care of the Dying is a non-profit public charity dedicated to social, professional, and policy reform aimed to improve the care system for patients with serious illness, and their families.  A very important site, check out  20 things that an internist could  do  to improve the quality of a patients end of life experience (under public policy link).

http://www.abhpm.org/   -  The American Board of Hospice and Palliative Medicine (ABHPM) was formed in 1995 to establish and implement standards for the certification of physicians

http://www.ahna.org - American Holistic Nurses Assn. "the heart of nursing, the science of holism," yearly conference that promotes holistic practices fror caregivers

http://www.americanhospice.org/  - The American Hospice Foundation

The Center to Advance Palliative Care (CAPC) is dedicated to increasing the availability of quality palliative care services in hospitals and other health care settings for people with life-threatening illnesses, their families, and caregivers..

Dale Larson's Hospice "Great Ideas" Page - another must see for hospice administrators and personnel

http://www.dyingwell.com  - Ira Byock's homepage, good resource

http://www.eapcnet.org/index.html - European Association for Palliative Care

http://www2.edc.org/lastacts/ - Innovations in End-of-Life Care an international journal of leaders in end-of-life care

http://www.epec.net/EPEC/Webpages/index.cfm - Our mission is to educate all healthcare professionals on the essential clinical competencies in palliative care.

Elisabeth Kubler-Ross Foundation -    The EKR foundation is dedicated to preserving and promoting the pioneering life work of Elisabeth Kübler-Ross MD and others committed to compassionate care for those who are near the end of life, those who have died, their loved ones, and their caregivers.

End of Life Nursing Education Consortium Project (ELNEC) is a comprehensive, national education program to improve end-of-life care by nurses, and is funded by a major grant from The Robert Wood Johnson Foundation. Primary project goals are to develop a core of expert nursing educators and to coordinate national nursing education efforts in end-of-life care.

NYU Literature, Arts, and Medicine Database, keywords death and dying
This NYU site has is a link list of Art, Film, Literature..... lots of quality links, VERYgood stuff, HIGHLY recommended!

http://www.edc.org/lastacts/  - Innovations in End of Life Care - The purpose of Innovations in End-of-Life Care, an international journal and on-line forum, is to improve the quality of care provided to patients near the end of life and to their families, through the dissemination and critical examination of innovative practices being implemented throughout the world.   

http://pages.globetrotter.net/inerson/ondeath/callanan.html - FINAL GIFTS An interview with Maggie Callanan  on Nearing-Death Awareness

http://www.gwish.org/   - The George Washington Institute for Spirituality and Health (GWish) is a university-based organization working toward a more compassionate system of healthcare.  "The spiritual dimension cannot be ignored, for it is what makes us human." Viktor E Frankl

http://www.growthhouse.org/  - Growthhouse- “The Yahoo of Death and Dying”, all purpose good site

http://www.helpthehospices.org.uk/ - Help the Hospices Charity in the UK

http://www.hospice-america.org - Hospice Association of America

http://www.hospicecare.com/ - International Association Hospice and Palliative Care -  good newsletter and calendar of events    

http://hospicecares.org/  - A comprehensive site with excellent, well organized links

http://www.hospicecollegeofamerica.org  -HCA is the distance learning subsidiary of Hospice Foundation of America

http://www.hospicefoundation.org  - HFA- Hospice stories, Journeys Newsletter per issues in the grieving process, Clergy to Clergy section, good links

http://www.hospiceinformation.info/ - world class information service for professionals and patients

http://www.hospicenet.org/ - good links on hospice topics

http://www.hospicepatients.org/  Hospice Patients Alliance

http://www.hospiceweb.com/links.htm - Hospice Web Links

http://www.hospiceworld.org/ - Hospice Education Association

http://www.hpna.org/ - Hospice and Palliative Nurses Assn. 

http://www.hospicecare.com/ - International Association for Hospice & Palliative Care

http://www.immunet.org/  - A non-profit AIDS service organization that maintains a website specifically designed for AIDS caregivers. Currently, Immunet produces online continuing medical education courses, maintain specialty link libraries, and publish AIDS/HIV treatment newsletters.

http://isis.csuhayward.edu/ALSS/soc/NAN/dd/dd.htm - Resources for Death and Dying Courses. Professor Nan P. Chico - a very interesting page.

http://www.lastacts.org/     - a national coalition to improve the quality of end of life care

The Legacy Kit - a 24 page booklet to help one organize documents and memories - for end of life planning

http://www.lib.mcw.edu/html/independent/pathfinders/palliative.html  -  Medical College of Wisconsin PALLIATIVE CARE DEATH AND DYING

http://www.milbank.org/endoflife/  -This report describes an advance in clinical policy for care at the end of life: the adoption of Core Principles for End-of-Life Care by a substantial number of medical specialty societies.

http://www.missoulademonstration.org/index.phtml -Welcome! You have found an innovative community project that is working to improve how people experience dying, caregiving, death, and bereavement. We focus on community-based research and public engagement to foster social change.

http://www.nahc.org/home.html - National Association of Homecare and Hospice

http://www.nap.edu/readingroom/books/approaching/appc.html  -   Examples of Initiatives to Improve Care at the End of Life

http://www.newciv.org/GIB/death.html   - the Global Ideas Bank - probably the most extensive page of links and information that we've seen, an absolute must to visit NOW...

http://www.ncoa.org  - National Council on Aging, very comprehensive website, a real must 

http://www.nhpco.org   - NHPCO- excellent data base for administrators and hospice personnel, hospice directory, conference information, and very good, well-described links 

http://www.nlm.nih.gov/medlineplus/hospicecare.html  - Medline+ hospice page...excellent!!

http://www.nursingexcellence.com - good site, excellent calendar 

http://www.nursing-standard.co.uk/  - Nursing Standard, UK

http://www.palliativecarenursing.net/ - good site about all aspects of palliative care

http://www.pbs.org/witheyesopen/ - PBS series

http://www.pbs.org/thoushalthonor/ - PBS series

http://www.rcn.org.uk/index.php  - Royal College Nursing, lots of conference listings in the UK 

http://www.selfgrowth.com/death.html - over a hundred articles and links related to death and dying

http://www.sharedexperience.org/ - Shared Experience Cancer Support Knowledgebase "It's what we all make it."A open, freely searchable, collection of first-hand accounts by cancer patients and their caregivers.

http://www.soros.org/death/    - Project on Death in America of the Soros foundation

http://www.stolaf.edu/people/leming/death.html A good list of links

http://www.supportivecarecoalition.org/default.htm - Improve living with life-threatening illness

http://www.capitalhospice.org/  - The Hospices of the National Capital Region, excellent educational programs

http://www.thehospice.org/caregiv/index.html
- Caregiving at Life's End, the National Train-the-Trainer Program

http://www.thirteen.org/onourownterms  - Bill Moyers'  On Our Own Terms

http://www.trinity.edu/~mkearl/death.html  - Sociology of Death and Dying

http://www.wholenurse.com - Alternative health and good search engine for nursing topics



Humor

http://www.findagrave.com/   - looks like a site with a sense of humor and could be interesting for geneaology research 

http://www.myDeath.net/  - Prepare to die!

http://www.nejman.com/todiefor/  - To Die For! is an irreverent , stream-of-consciousness celebration of  cemeteries and the lighter side of death. It is not a definitive or  comprehensive study of the subject, but rather a light-hearted glimpse  at a traditionally gloomy topic.



Life Review

http://www.capturinglifestories.com/autobiographykit.html - Audio autobiography kits

http://www.totem-software.com/index_flash.html - software for sharing life's stories


http://www.lifebio.com/  -questions to help in writing the biography of a loved one

http://www.sharedmemories.com.au/ - many tools for life story writing




Spiritual Resources

www.aapc.org   - American Association of Pastoral Counselors (AAPC). Represents and sets professional standards for over 3,000 Pastoral Counselors and 100 pastoral counseling centers in North America and around the world.

www.acpe.edu  -  Association for Clinical Pastoral Education (ACPE). A multicultural, multi-faith organization devoted to improving the quality of ministry and pastoral care offered by spiritual caregivers of all faiths.

http://www.alayainstitute.org/ - The Alaya Institute offers up-to-date resources that support individual growth, spiritual development, End-of-Life education and policy, compassionate service, and access to hospice and grief support. Also offering an end of life care practicioner program whichoffers the absolute best in end of life care education with leaders in the field such as: Ram Dass, Ange Stephens, Frank Ostaseski, Rachel Naomi Remen MD, Cheryl Nelson, Charlie Garfield, and Ramita Bonadonna. The program is centered in the SF Bay area and consists of monthly sessions with certification at the end of a year.

http://www.bardo.org/   - The Bardo of Death Studies - "Our mission at the Bardo of Death Studies is to assist in the development of discourse, discussion, and archival materials related to personal experiences in Death and Dying. We serve as a friendly net repository for these personal reflections both from the professional and the lay public) and a crossroads resource for others who happen by in search for personal reflection in their own time of need."    

http://www.beyondtheveil.net/  -  "A Near Death Experiencer answers questions most people are afraid to ask"   

http://www.buddhanet.net/ebooks_g.htm - Here's one you have to check out  for it's sheer weight in gold - another one of those "read-it-by-Acrobat Reader" sites. The book called From Womb to Womb is the one to note for references to the bardos. For specific references to death and dying and ebooks see: http://www.buddhanet.net/r_booksd.htm

www.cappe.org  - Canadian Association for Pastoral Practice and Education (CAPPE). A national multi-faith organization which is committed to the professional education, certification and support of people involved in pastoral care and pastoral counseling.

http://www.centerforcompassionatecare.org/    - "Please journey through our website to acquaint yourself with our dream, our professional staff, and the many services we offer." Check out the programs and events page which seems to be very active in this Las Vegas organization

http://www.careofdying.org -  At Supportive Care of the Dying: A Coalition for Compassionate Care, so are we are a coalition of like-minded Catholic health care providers and service organizations dedicated to promoting cultural change that embraces supportive care, compassionate relief of suffering and pain, and symptom management for helping people living with life-threatening illness. We recognize a better death is possible.

http://www.cpsp.org/   College of Pastoral Supervision and Psychotherapy, Inc. (CPSP). A theologically-based certifying and accrediting covenant community dedicated to "recovery of soul," and granting diploma status in pastoral psychotherapy.

http://www.dharma-haven.org/five-havens/death.html - Dying without shame, dying without panic...a wonderful informative website and resource

http://dyingwell.com/spiritualcarehp0704.htm -  Spiritual Care at the End of Life, an excellent article

http://www.gwish.org/   - The George Washington Institute for Spirituality and Health (GWish) is a university-based organization working toward a more compassionate system of healthcare.  "The spiritual dimension cannot be ignored, for it is what makes us human." Viktor E Frankl

http://www.healthcarechaplaincy.org/who_we_are06.html - HealthCare Chaplaincy and their excellent list of Links

http://hinduism.about.com/religion/hinduism/cs/deathdying/ - links on the Hindu view of death 

http://www.holyisland.org     one possible path here is to click on Links - Samye- Spirituality - Buddhist Teachings - In-Depth Teachings - VOLUME 2, NUMBER 3 DEC. 1998 Teachings on the bardo by  Khenchen Thrangu Rinpoche .  At this point you'll nee Acrobat Reader which if you don't you can  download from www.adobe.com for free. Download  "Get Acrobat Reader"   
(for free) at the bottom of Adobe Home page.

http://www.journeyhome.com/abigail/spiritual.html - Spiritual Resources for the Dying  -   This listing of resources is meant to help people dealing with their own death or the death of someone they love. Those listed here are sincere spiritual teachers, healers, counselors, and authors who have sought to help us all with this last stage of life.

http://www.kathokgonpa.ca/LR%20Phowa%201998.htm -Teachings on Phowa

http://www.khandro.net/mustardseed_1.htm - nice all around website with Buddhist and other teachings

http://kkeys.home.texas.net/~kkeys/spirit/buddhism/bardo/0days.html  - excellent Bardo instructions for the first moments and days following death of the body

http://www.lib.virginia.edu/small/exhibits/dead/otherworld.html  - an incredible look at the Tibetan Book of the Dead, also see http://www.lib.virginia.edu/small/exhibits/dead/dying.html  and http://www.lib.virginia.edu/small/exhibits/dead/western.html

www.nacc.org  -  National Association of Catholic Chaplains (NACC) An association of pastoral ministers who participate in the church´s mission of healing whose mission is to promote professional development and support services for our members.

www.najc.org/main/index.htm  - National Association of Jewish Chaplains (NAJC). A professional organization for Rabbis, Cantors, and other Jewish professionals that seeks to enhance the kedusha of Jewish Chaplains that they may provide quality Jewish, religious, and spiritual care.

http://www.orthodoxinfo.com/death/index.aspx - very  interesting orthodox Christian website, lots of links to well written articles

http://www.OmMaNiPadMeHum.com/  - turn your harddrive into a prayer wheel  

http://www.slimeworld.org/lrs   -  The Labyrinth Readers Society, learn the art of reading from sacred texts for those who are in need or dying.   

http://www.spcare.org/  The aim of the Spiritual Care Program is to demonstrate practical ways in which the compassion and wisdom of the Buddhist teachings can help those facing illness or death, their families, and medical caregivers.

http://www.urbandharma.org/   - Website of Kusala Bhikshu and friends, plenty of information here about Buddhism - very clearly presented and practical

http://www.well.com/user/suscon/esalen/participants/Halifax/dying.html  - Joan Halifax, Being with Dying    

http://www.wholenurse.com
- alternative health and good search engine for nursing topics


http://www.whosedeathisitanyway.com/ - PBS Special

http://www.wonderworksonline.net/books_calendars/death_dying.html  - Wonderworks, Books and Calendars, Death and Dying

http://www.worldprayers.org/index.html   -  The World Prayer Collective, excellent site!! 

http://www.zenhospice.org - very good workshops


Traditions & History  

http://userpage.fu-berlin.de/~aeimhof/seelefr.htm - woodcuts from Ars Moriendi

http://death.monstrous.com/ars_moriandi.htm

http://en.wikipedia.org/wiki/Ars_moriendi  -  excellent discussion of Ars Moriendi


Etcetera...

http://www.directcasket.com/index.htm - Affordable Direct sales of Caskets 

http://www.findagrave.com/   - looks like a site with a sense of humor and could be interesting for geneaology research 

http://www.funerals.org/  - Funeral and Memorial Societies of America

NYU Literature, Arts, and Medicine Database, keywords death and dying 
This NYU site has is a link list of Art, Film, Literature..... lots of quality links, VERYgood stuff, HIGHLY recommended 

http://library.thinkquest.org/16665/ghosts.htm  - A Thinkquest original look at death and dying.

http://www.myDeath.net/  - Prepare to die!

http://www.spikemagazine.com/1097dead.htm - Review of Tim Leary's Film about his death.

http://www.OmMaNiPadMeHum.com/  - turn your harddrive into a prayer wheel    

http://www.gatewaysbooksandtapes.com/  - excellent metaphysical books    

http://www.bardotrainingcenter.com  - bardo trainers    

http://www.jewelsofancientlands.com/  - beautiful and ancient artifacts    

http://www.hei-art.com/  - art for voyagers    

   

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